hlhs

things we do after nap :: colored sand and drum jam

fun activity afternoons

fun activity afternoons

fun activity afternoons

Supplies:

Colored sand (a Scrap Exchange find), various containers, a plastic storage bin, and a piece of laminated cotton fabric on the floor for easy clean-up. 

Super simple, super engaging for the 2.5 year-old.

Meanwhile ...

heart baby has a strong beat!

heart baby has a strong beat!

heart baby has a strong beat!

heart baby has a strong beat!

Sitting babies and drums are a match made in heaven! I'm thinking of having these photos printed off and sending copies to Lachlan's cardiologist and the life-saving good people at Duke's pediatric cardiac ICU. 

"Heart Baby Has Suprisingly Good Beat,"  I would write on the back.

Hardy-har-har. 


this boy

20110803_L's first swing and swim_6908

20110803_L's first swing and swim_6931

20110803_L's first swing and swim_6911

20110803_L's first swing and swim_6902

Oh, this boy. He only gives you one passing quizzical look in a new situation before deciding to go with the flow and enjoy whatever comes his way. In these past few weeks, as I bulldoze through the day trying to unpack this and find a place for that, this little fellow be-bops along close to my heart. I look down at him in his carrier, returning to reality after drifting into planning mode (I should do this, I need to make that, I must sit down and write back to so-and-so ...) He flashes me a wide-mouthed grin, then bursts into a belly laugh.

This boy. What a gift he is. Joyful. Round. Forgiving.

 


parenting in odd places

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The hospital lobby

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9th floor life flight helicopter landing pad

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5th floor fish tank, looking a tad crazy

First things first. Lachlan is doing great. His incision issue turned out not to be a serious thing - just a bit of dissolved fatty tissue, not too much in the way of infection. Although we didn't catch them with the camera, Lachlan's smiles are happening all the time. We're just hanging out here for a few more doses of IV antibiotics then they'll let us go home. Lachlan must have been channeling your kind wishes. Thank you so much for your words of support. That was a rough day for me, and I was bolstered by your presence in my life.

Second things second. We, the parents and grandparents, will be oh so happy to be back home again (this time for good!) You know what they say ... home is where the (healthy) heart is. Feeling grateful today for Lachlan's strength and good spirits.

 


yearning for normal

At a post-op check-up today, the doctors decided to re-admit Lachlan to the hospital due to an infection at his incision site.

If I can see through the tight throat and mother's heartache, I can tell you that my baby is feeling better. His smiles are more frequent, and he seemed to thrive in his nearly three days at home.

He will be getting the infected site drained this evening, and will be put on IV antibiotics. Hopefully the stay will be short. He doesn't have to be in the ICU, just a regular hospital room and he won't be hooked up to all of the wires that constantly measured his heart rate, breathing rate, etc. like before. We should be able to walk the halls with Lachlan in a sling, toting the IV pole behind us.

I'm trying to hold myself together. This isn't really a serious thing, but it is so stressful to be back in the hospital. Plus, I feel like Finn was just beginning to be at ease with his brother at home. This is tough. Wish us well these next few days.


lachlan is home

We breathed a sigh of relief yesterday afternoon when Lachlan was finally released from the hospital, 11 days post-surgery. It was a rollercoaster of a ride, one which reminded me what my mantra was when I was having a rough mothering day - "at least we aren't in the hospital." Lachlan struggled with the hospital environment even though we were there with him all of the time. I think it must have been traumatizing for him to have been poked and prodded so often.

But we are home, and now is a time for healing. He's certainly not completely back to his mellow self yet, and seems to still be suffering from the post-surgery headache that can last for weeks. So we're cuddling up here, comforting a healing baby, re-adjusting to having a baby brother, trying to find the balance between productivity and rest.

Thank you again for all of your positive thoughts and prayers! I'll (hopefully) be back in this space regularly starting on Monday.


grumpy at camp cardiac

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Finn, doing his best impression of Lachlan. Or ... simply being a two year-old.

You've probably figured out by now that I don't like taking pictures of Lachlan in the hospital. I could blame it on the flourescent lights, but the truth is that I don't really want any pictures of him in here. His story is permanently written as scars across his chest, and I'm not sure that it's a story that is best told with pictures.

Anyway. Here we are. Lachlan threw us a few pulmonary curve balls the past few days, and we've been dealing with them. Two steps forward, one step back, but it seems like we're over the hump. He seems to be in much less pain, and is calm and alert for a good part of the day now. We're in the stage where they start weaning him off of his various tubes and wires. I'm looking forward to seeing him smile again. Everything will be ok. I can feel it now.

lachlan's bubble pants + envelope tee 3

Had to post this one again. Go get em', Lachlan!

 

 


surgery day

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This photo was taken a few days ago. We had a picnic with friends at a local creamery's ice cream stand out in the country.

As I look at it now, I'm comforted. Here I am, back at the pumping room in the hospital - all the familiar-yet-not-comforting smells and sounds. That little smile up there is comforting. In fact, he flashed us some super big grins this morning as we crossed the road at 6 a.m. and entered the hospital.

He is out of surgery now, and everything went well - no surprises. Now comes the hard part. Parenting a baby who is clearly uncomfortable. So hard. Patrick is with him now, holding his hand. He hasn't woken up yet, but I imagine he will sometime tonight.

I'll try and keep you updated as I am able. Thank you so much for your love and light,

Meg


lachlan is well

We are already home from the hospital after his heart catheterization this morning! We were told to expect an overnight stay in the ICU, but this little baby is doing so well that they sent him home right away. You never would have known that he was under general anesthesia earlier today!

Thank you for all of your warm wishes, positive vibes, and prayers.

Meg, Patrick, Finn and Lachlan


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Source: style-files.com via Meg on Pinterest

 

Hello there. Don't you wish you were sitting at that table right now? Me too.

I'm feeling my chest getting a little tighter by the day as we prepare to take Lachlan back to the hospital, first for a heart catheterization this coming Monday, then for his big surgery the following Monday. He'll be there overnight for the cath and an estimated week to ten days for his Glenn.

He looks so healthy, so happy. But we know that this period between the first two surgeries is the most tenuous. The temporary shunt that they put in during his first surgery could fail at any moment, so it is best to get this second surgery over with. I only wish I could explain this to Lachlan. He's in for several weeks of high-pressure headaches after this surgery as his body adjusts to the new blood flow. Oh, little guy. I want so to protect him from all harm, yet paradoxically it will be me who hands him over to the surgeons, who will hurt him out of necessity so he can continue to enjoy life.

And enjoy it he will, I'm sure. He already does. As parents, we cannot shield our children from all suffering that comes their way in this life. We can just hold their hands and love them through those rough patches.

This video lifted my spirits.

The Growing Up Sew Liberated blog tour is stopping at maya*made today, and Maya's hosting a giveaway. She also made some a-dorable, hand-printed bee and bird bibs, so do stop by.